TIF published Second Edition of Guides for Haemoglobinopathy nurses and Thalassemia and SCD patients

TIF published Second Edition of Guides for Haemoglobinopathy nurses and Thalassemia and SCD patients
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TIF published Second Edition of Guides for Haemoglobinopathy nurses and Thalassemia and SCD patients

August 2025
|In Network updates
|By javi

In July, Thalassaemia International Federation (TIF) published updated versions of two of its guides. First, a second edition of its guide for Haemoglobinopathy nurses. It seeks to support nurses caring for individuals with Thalassaemia and Sickle Cell Disease around the globe and equip them with the tools to navigate the complexities of care for Haemoglobinopathies.

The second edition of “Know Your Rights: A Guide for People Living with Thalassaemia and Sickle Cell Disease (SCD)” is aimed at patients, caregivers, and families and wants to empower them by informing them of their healthcare and social rights.

Please find guide for Haemoglobinopathy nurses here and the guide for patient rights in Thalassaemia and SCD here.

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    Blood & Beyond is a multi-stakeholder initiative funded by CSL, involving experts from the fields of haematology, transfusion medicine, anaesthesiology, patient blood management, nursing, patient advocacy, health economics, and hospital management, with support from policymakers committed to driving improvements in this area. The aim of the initiative is to raise awareness of the importance of good blood health and of the impact of anaemia on patients, healthcare systems and society at large, with the overarching goal to help advance policies and practices that improve patient outcomes by supporting patient-centricity in anaemia prevention, diagnosis, and management through patient blood management (PBM) and innovation.

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