Patients And Families

Understand more about the experiences of people undergoing regular blood transfusions and the impact this has on their lives

Patient Experiences

Learn how regular blood transfusions can impact people’s lives. Discover the personal stories from Elena, Bergit, Stella, Paolo and Radu. These stories reflect the different experiences and frequencies of regular blood transfusions that make each patient’s journey unique.

Elena Mylona, Thalassaemia major patient, Limassol, Cyprus
Birgit Korschan-Kuhle, Myelodysplastic syndrome (MDS) patient, Leukämiehilfe Rhein/Main, Germany
Stella Pelteki, Board Member of DEGETHA & Friends
Paolo Pasini, Myelodisplasia patient, Italy
Radu Ganescu, Beta Thalassaemia patient, Association of People with Major Thalassaemia, Romania

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    © CSL 2026

    Blood & Beyond is a multi-stakeholder initiative funded by CSL, involving experts from the fields of haematology, transfusion medicine, anaesthesiology, patient blood management, nursing, patient advocacy, health economics, and hospital management, with support from policymakers committed to driving improvements in this area. The aim of the initiative is to raise awareness of the importance of good blood health and of the impact of anaemia on patients, healthcare systems and society at large, with the overarching goal to help advance policies and practices that improve patient outcomes by supporting patient-centricity in anaemia prevention, diagnosis, and management through patient blood management (PBM) and innovation.

    Contact

    For further information and queries, please contact the Blood and Beyond Secretariat: javier.lopezpanos@dgagroup.com

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