Eurordis provides recommendations to achieve a mature ERN system in 2030

EURORDIS – Rare Diseases Europe published the paper “Recommendations to achieve a mature European Reference Network (ERN) system by 2030”. The paper, accompanied by a policy brief, analyses the advances made in ERNs systems so far, presents EURORDIS vision for the future of the ERN system and calls for all stakeholders to collaborate towards the integration of ERNs within EU healthcare systems. More information can be found here.

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    Blood & Beyond is a multi-stakeholder initiative funded by CSL, involving experts from the fields of haematology, transfusion medicine, anaesthesiology, patient blood management, nursing, patient advocacy, health economics, and hospital management, with support from policymakers committed to driving improvements in this area. The aim of the initiative is to raise awareness of the importance of good blood health and of the impact of anaemia on patients, healthcare systems and society at large, with the overarching goal to help advance policies and practices that improve patient outcomes by supporting patient-centricity in anaemia prevention, diagnosis, and management through patient blood management (PBM) and innovation.

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